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Travels of an addled brain to somewhere near normality whatever that might be when it's at home.
Hello...back with yet another update. So..Friday morning was my appointment with the Dementia Neurologist who has now referred me to a colleague but I cannot for the life of me remember who he said that was. He wants to see if my memory loss could be due to lifelong undiagnosed Attention Deficit Hyperactivity Disorder (already spotted back in the 90s by a private Clinical Psychologist) when I was in my 30s.
Back in October 2013, I was having a bit of a moan about how my son was away for a second holiday that year. My daughter wasn't about when I called her care home on her birthday, only to find out that she was also on holiday, as that's what she had asked for the staff to organise for her birthday.
I was finding myself at a loose end and alone in the flat I shared with my son and his girlfriend at that time. An old friend of mine messaged me from the hospital where he was recovering from a major operation and said that when he was well enough to leave hospital I could stay at his place for a break away in Eastbourne.
I started visiting him regularly in Brighton Hospital, which involved a round trip of about 8 hours, on foot and by ferry, rail and taxi. Then when he transferred to the hospital in his home town in Eastbourne the round trip was about 10 hours. We got on so well that we ended up sharing a flat for 9 years after a couple of months of emergency housing in Travelodge.
Billy died last year on November 25th and left me with so many fun memories of the longest holiday I have had
I was really impressed with all the publications sent to me from The Alzheimer's Society. I have a lot to keep me focussed in a positive way. I need a bit of positivity after attempting to start on some puzzles from this book and realising I can no longer do any of the puzzles I used to be able to complete easily, a couple of years ago
Things appear to be moving forward very quickly recently. I had a memory clinic appointment on the 13th of November and while I was there, the Doctor who saw me said that she would refer me to the Neurology team.
So the letter from the neurology team arrived. Although I was told at the memory clinic I should let them know about the Dementia Neurologist appointment as the memory team would help on the day, I called as suggested and was told they couldn't help.
My first memory clinic appointment was this afternoon. It felt really strange that I needed someone to support me with this. I'm now in my early 60s and feel like I need a grown-up with me to hold my hand.
We went camping in Devon many times from our home in Gosport in Hampshire. One Summer while in our family tent, a storm blew up and our dad and my big brother held the tent up all night while our mum, my big sister, me and my little brother stayed in the car.
I have just been requested to report my job search results to the DWP as part of my commitment so I can receive financial support
My best friend died in November last year and I was his live-in carer. He has a huge family in the same town and none of them, except a couple of notable exceptions, who supported Billy for years, has called, texted, nor contacted me on social media since he died nor since the funeral.
I am preparing for a telephone appointment about Universal credit. I was sent a text today informing me that the call is this afternoon and I'm expected to magically come up with forms of ID I don't have in about an hour or so.
Amelia Gammon had already been on a personal mission to adopt a greener lifestyle for more than a decade before launching bide in March 2020.
Having made the switch to using many eco alternatives to household essentials herself, she knew that these types of products needed to become more accessible and affordable before they could become mainstream.
Amelia originally began curating boxes of existing green cleaning products. But a little research showed many of the brands behind them were not as ethical as they might appear from the labels.
So, bide began producing their own products, which Amelia saw as an opportunity to help empower people who often face barriers to work.
Billy said this to me as I left the living room to make the bed and sorted the laundry He didn't get to have the prawn salad
I was with Billy as he was dying. It is comforting to know that I was there for him through palliative and end-of-life care.
Billy asked me not to go to his funeral as I would be expected to be sociable with people who didn't spend time with him when he was alive.
The link to the interview is HERE