So I checked my health record and I was diagnosed (by the NHS) with heart failure in 2016 after more than 20 years of symptoms. Then diagnosed with stage 3 Chronic Kidney disease in 2022 after 8 years of symptoms. I found out about the kidney disease when I randomly checked my health records on my NHS app in February. I am on a waiting list for housing in Gosport but the waiting list is 20 years long while the average life expectancy for people with both conditions is about 2.2 years...oops!
And Now For My Next Trick
Travels of an addled brain to somewhere near normality whatever that might be when it's at home.
Monday 4 March 2024
Thursday 22 February 2024
Confused Again! What a Surprise! Health Update
Saturday 17 February 2024
How To Change a Lightbulb in a Social Media Group
How many people does it take to change a lightbulb in a Facebook group?
Sunday 3 December 2023
How To Give A Cat a Pill
Neurology Appointment and Thoughts
Hello...back with yet another update. So..Friday morning was my appointment with the Dementia Neurologist who has now referred me to a colleague but I cannot for the life of me remember who he said that was. He wants to see if my memory loss could be due to lifelong undiagnosed Attention Deficit Hyperactivity Disorder (already spotted back in the 90s by a private Clinical Psychologist) when I was in my 30s.
He also suspects that the later deterioration of my cognitive skills might be from the cardiac arrest and coma in 2016. No one since my hospital admission has ever suggested anything like a brain injury, nor told me anything about my hospital stay, nor any aftercare offered.
I know this might sound like a positive step forward, but I have waited such a long time to be heard by anyone, I'm starting to think this turn of events is too good to be true.
So far I have been waiting more than 25 years for my privately sourced diagnosis of ADHD to be confirmed by someone on the NHS. I'm in my 60s now. Going by experience I might have my gravestone made with the wording 'still waiting for an ADHD diag....oh look, a squirrel!'.
The reason I am seeking an assessment is that without medical support, there is a 20-year waiting list for suitable supported housing in my home town. I also have heart failure and it's unlikely I will survive another 20 years I just want to go back home to be near all that is familiar to me.
Wednesday 22 November 2023
Remembering My long Holiday With Billy
Back in October 2013, I was having a bit of a moan about how my son was away for a second holiday that year. My daughter wasn't about when I called her care home on her birthday, only to find out that she was also on holiday, as that's what she had asked for the staff to organise for her birthday.
I was finding myself at a loose end and alone in the flat I shared with my son and his girlfriend at that time. An old friend of mine messaged me from the hospital where he was recovering from a major operation and said that when he was well enough to leave hospital I could stay at his place for a break away in Eastbourne.
I started visiting him regularly in Brighton Hospital, which involved a round trip of about 8 hours, on foot and by ferry, rail and taxi. Then when he transferred to the hospital in his home town in Eastbourne the round trip was about 10 hours. We got on so well that we ended up sharing a flat for 9 years after a couple of months of emergency housing in Travelodge.
Billy died last year on November 25th and left me with so many fun memories of the longest holiday I have had
Saturday 18 November 2023
Positivity Please
I was really impressed with all the publications sent to me from The Alzheimer's Society. I have a lot to keep me focussed in a positive way. I need a bit of positivity after attempting to start on some puzzles from this book and realising I can no longer do any of the puzzles I used to be able to complete easily, a couple of years ago